i'll get there,
one day.
Tuesday, August 9, 2011
Friday, August 5, 2011
Often Awesome: A Love Story - Episode 1
people always ask me, "what is it really like living with ALS?" as honest as i can, i try to describe my day-to-day routine, what goes through my head and how my body feels. my family and friends who have known me preALS have witnessed first hand how my body has melted due to the inferno that is Lou Gehrig's Disease. i always wondered what it would be like to have a video camera following me 24/7 and be able to watch it at super high speed. would my muscles shrink as fast as a hummingbird flaps his wings? would people witness the colossal failure of my body and realize how unfair it is, that doctors searching for a treatment lack the appropriate funding because of how relatively unknown ALS actually is?
Tim LaFollette has ALS. Tim has a mission. Tim has more courage than anyone i know. and Tim has let a camera document ALS's war path over his entire body. Often Awesome is the award winning web series that documents Tim's battle with ALS. get to know Tim and his army of sparrows (you'll understand the reference soon) relentlessly fight to keep the upper hand in this unwavering war. currently there are 33 episodes released on You Tube and Facebook in the ongoing series. please visit my blog weekly for new episodes...
Tim meet my Bloggees, Bloggees meet Tim...
Tim LaFollette has ALS. Tim has a mission. Tim has more courage than anyone i know. and Tim has let a camera document ALS's war path over his entire body. Often Awesome is the award winning web series that documents Tim's battle with ALS. get to know Tim and his army of sparrows (you'll understand the reference soon) relentlessly fight to keep the upper hand in this unwavering war. currently there are 33 episodes released on You Tube and Facebook in the ongoing series. please visit my blog weekly for new episodes...
Tim meet my Bloggees, Bloggees meet Tim...
Saturday, July 30, 2011
there's a storm a' brewing
no, no, no seattleites, i'm not talking about the weather (collective sigh of relief). i'm talking about the WNBA champions, the Seattle Storm. if you haven't been to a game this year, you are for sure missing some great basketball. you owe it to yourself to head downtown on august 11th, grab a bite to eat at my favorite bar Jabu's, and then head to the Key to watch the Storm take on Tulsa.
i bet you're thinking, "where do i get tickets?" well, i've got a solution for that! the Seattle Storm is partnering with the Melissa Erickson Foundation to create awareness for ALS and raise money for my ongoing medical needs. all you have to do is click on this link and it will take you to the Storm website. fill out your specific ticket needs, and find the section where it asks for the PROMO CODE. enter "MELISSA" to get the special event price and so a portion of the price will be donated to my foundation.
how awesome is that ?!?! welp, that's not all...on top of the ticket sales we will also be doing a 50/50 raffle. once you enter Key Arena, keep a lookout for my peeps in last year's blue pub crawl t-shirts and a roll of raffle tickets. buy a bunch of tickets and wait until the second half until hopefully your number is called. we will add up all the proceeds from the raffle and the winner takes home half and the MEF will get the rest!
this is such a special event for me because i love basketball and i adore watching a game with friends. after games my friends and i head back to Jabu's Pub for some karaoke and a few drinks. word on the street is Jabu's wants to get in on the donation train by donating the tips from karaoke to the MEF as well.
i am one lucky and loved girl! i hope you guys come to the game and come and find me so i can return the LOVE.
i bet you're thinking, "where do i get tickets?" well, i've got a solution for that! the Seattle Storm is partnering with the Melissa Erickson Foundation to create awareness for ALS and raise money for my ongoing medical needs. all you have to do is click on this link and it will take you to the Storm website. fill out your specific ticket needs, and find the section where it asks for the PROMO CODE. enter "MELISSA" to get the special event price and so a portion of the price will be donated to my foundation.
how awesome is that ?!?! welp, that's not all...on top of the ticket sales we will also be doing a 50/50 raffle. once you enter Key Arena, keep a lookout for my peeps in last year's blue pub crawl t-shirts and a roll of raffle tickets. buy a bunch of tickets and wait until the second half until hopefully your number is called. we will add up all the proceeds from the raffle and the winner takes home half and the MEF will get the rest!
this is such a special event for me because i love basketball and i adore watching a game with friends. after games my friends and i head back to Jabu's Pub for some karaoke and a few drinks. word on the street is Jabu's wants to get in on the donation train by donating the tips from karaoke to the MEF as well.
i am one lucky and loved girl! i hope you guys come to the game and come and find me so i can return the LOVE.
Wednesday, July 27, 2011
Sunday, July 24, 2011
Wednesday, July 20, 2011
ring around the needle
ok, its been long enough. yes, i know, almost a year but i promise that i have a good excuse. enough of that, let's just get to the point... on August 27th the Ring Around The Needle returns for its third consecutive attempt to fill Lower Queen Anne with colorful, loud and slightly drunk pub crawlers. last year over 500 people circled through 8 bars raising over $30,000 for the Melissa Erickson Foundation!!! this year promises to be even bigger and better. we are anticipating a larger crowd so we are hoping to add new bars to the already amazing line up. sign up early and bring all of your friends! everyone 21 years and older is welcome to participate. sign up at www.ringaroundtheneedle.com right now!!! to whet your appetite, i'll leave you with a few pictures from last year...
Friday, July 8, 2011
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